Have you ever been on Social Security Disability (private poll)? Advice needed.

Contributor: indiglo indiglo
Quote:
Originally posted by asphyxia
I have a friend that worked for SSDI as a claims reviewer. He was the person that read through the applications and all the supporting medical documentation to determine if the person was eligible or not to receive SSDI. He was actually encouraged to ... more
Thanks for all that great, insider info Asphyxia! It's been so long since I had to go through all that, I'd forgotten a lot of it.

Your friend sounds very nice, and like they really tried to help people. Sometimes we do get cynical when dealing with government workers so often, it was nice to be reminded that we shouldn't be so close-minded about the workers either!
05/22/2012
Contributor: spineyogurt spineyogurt
I have not
05/22/2012
Contributor: lisasharrer lisasharrer
Quote:
Originally posted by - Kira -
A little back story and a poll (because I know you guys love polls).

First off, I want to apologize for not being around as much as I used to. For those that don't know, I have Bipolar I (link to WebMD in case you don't know what ... more
i have been on ssi
05/22/2012
Contributor: SimpleTeaser SimpleTeaser
I haven't been on it but, do have a few medical issues that I'm sure would qualify. I just don't have medical insurance or the means to see the Doctor on a regular basis.

I do wish you the best of luck.
05/22/2012
Contributor: Peggi Peggi
This is actually very helpful, as I'm going through the same thing! I am currently on a mission to contact all of the doctors I've seen for the last 9 years for everything!
05/23/2012
Contributor: ksparkles16 ksparkles16
I haven't personally. My little brother is on SSD because he is autistic.
05/23/2012
Contributor: asphyxia asphyxia
Quote:
Originally posted by indiglo
Thanks for all that great, insider info Asphyxia! It's been so long since I had to go through all that, I'd forgotten a lot of it.

Your friend sounds very nice, and like they really tried to help people. Sometimes we do get cynical ... more
No problem! I can't fault anyone for cynicism! I'm a pretty huge cynic myself. I knew my friend had valuable expertise in these matters. The amount of paperwork and bureaucracy can be REALLY daunting, especially when you're dealing with the malady that necessitates your application.

He just wanted to add that the reason many people get approved on appeal is because once it gets to a judge, the rules change significantly. The judge has WIDE latitude to approve cases. Unfortunately, it can take several years to get to a judge, so the best thing is to work really hard to jump through all the hoops and get approved early.
05/23/2012
Contributor: - Kira - - Kira -
Thank you guys so much!! This has been a huge help!

indiglo - My therapist said one of her clients had a SSD doctor meet with her with his back turned to her the whole time, asked her three questions, and said she could go. WTF?! How could you make a determination like that? Plus - how rude! I'd probably leave crying and having a panic attack. I'm incredibly nervous about seeing their doctor.

asphyxia - Question. My therapist is a doctor, I believe PhD. I see her weekly and her info will be the most useful for my case as well as the MD I saw as a child/teenager. My current MD has some info that will be helpful, but unless I'm in crisis mode, I usually only see her once every three months, so she's not as up to date on my daily struggles as my therapist is. (My therapist is actually a psychologist/psychiatr ist - I always get which is meds and which is therapy confused). Will they take her info as primary?

Also, if I've gone through the stress of getting there but have had increasingly worse cycles because of it, would that count as "change"? It's not that my illness has changed, it's just that stress itself is a trigger and the more that's been placed the worse my swings have become. Also, Bipolar has what's called the Kindling Effect, meaning that each cycle becomes worse than the last. Would that count?

Thank you for the inside scoop!
05/23/2012
Contributor: P'Gell P'Gell
Quote:
Originally posted by - Kira -
Thank you all so much for the advice and support! Keep it coming!

Housework and volunteering are great ideas. Those things have sounded overwhelming lately, but maybe getting out and doing something would be good for me. Plus my new meds ... more
Thanks, honey, I hope you're feeling better soon. Does your doctor know you're swinging UP from the new meds? Just call and let him know, it may be normal for that med (I don't know, and it's not my field, so I don't want to guess) just so it will be in the chart and he can talk to you for a minute. OK? Please tell me you'll do that?

Yeah, the migraines and the fibro suck. I HATE insurance companies, they try to control what meds I take and how much, even if my doctor says differently. They've threatened to "cut" me off, if I do certain things, which I found out was illegal. Read them the riot act, but my husband's work doesn't have HR! When I try to call the insurance company, their new policy is "we don't argue with customers." Meaning, "We don't give a shit if what we are doing is wrong, illegal or against the rules. We won't talk to anyone about it." I've been letting my doctors fight my battles for me, they're the only ones who can get through and make an impression.

It should be ILLEGAL to not insure sick people as we are those who need it the most. Isn't some new law about not bumping people for pre-existing conditions supposed to kick in soon?

So help me, if the Right tries to undo these Health Care advances..... so help me.... Rich bastards. How dare they even consider making things more difficult for the poor and the middle class. I hope the bastards lose.... I'm gonna shut up now.
05/23/2012
Contributor: - Kira - - Kira -
Quote:
Originally posted by P'Gell
Thanks, honey, I hope you're feeling better soon. Does your doctor know you're swinging UP from the new meds? Just call and let him know, it may be normal for that med (I don't know, and it's not my field, so I don't want to ... more
Don't worry! I had an emergency appointment with her last Friday. We cut the med that was causing it in half and added in a rescue med. She keeps getting emails from me daily on how it's going so we can increase the rescue med as needed. I harass the heck out of my doctors. LOL And yeah, it's really common for antidepressants to cause mania in Bipolar patients.

WTF?! Is there someone you can report them to if they're doing things illegally like that? That's terrible.

I saw some website about the insurance for pre-existing conditions. You have to be uninsured for six months to qualify is all I know. It exists, which is good, but six months uninsured would put me in bankruptcy with what my meds and doctors all cost.
05/23/2012
Contributor: P'Gell P'Gell
Quote:
Originally posted by - Kira -
Don't worry! I had an emergency appointment with her last Friday. We cut the med that was causing it in half and added in a rescue med. She keeps getting emails from me daily on how it's going so we can increase the rescue med as needed. ... more
I'm glad you are keeping in touch with your doctors.

I don't know if what happened to you was actually "illegal." I know that when our insurance company threatened me (when the nurse asked if they would cover a certain amount of pills per month, and I'd buy the rest out of pocket, the woman at the insurance company said she "cut her off" if we did that.) It was a different situation. It was illegal.
05/23/2012
Contributor: asphyxia asphyxia
Quote:
Originally posted by - Kira -
Thank you guys so much!! This has been a huge help!

indiglo - My therapist said one of her clients had a SSD doctor meet with her with his back turned to her the whole time, asked her three questions, and said she could go. WTF?! How could ... more
No problem! The fact that they're all doctors is really good! If they're all at the same clinic, you can just list the name and they will get all your records from there. If there are other doctors that you've seen in different places, make sure you list them too. It's important to make sure they get records from ALL of the people that have treated you for this, at least for the past year. They will still use all your records from NPs or PAs to show that the problem is ongoing, they just need the info from your MDs or PhDs to make the determination.

He said that it's pretty unlikely they'll schedule an appointment with one of their doctors. The only time they do that is if they can't get the necessary information from your medical records (they're looking for the info requested on the Mental Status exam form). If they do schedule an appointment for you, he's pretty sure that you can call them and request that they let you go to your own doctor for it. The most important thing is that you don't miss the appointment! They can deny your case just for that.

It really sounds like you've got all your ducks in a row! If you need any help at all, just let me know. My friend is happy to help, and so am I!
05/23/2012
Contributor: - Kira - - Kira -
P'Gell - No, I meant so you could report your situation! Insurance companies shouldn't be able to treat you like that. It's not right and someone somewhere should be able to do something about it.

asphyxia - Yay! I was worried they may take my therapist as "second string" since she doesn't prescribe meds, but I'm glad they'll take her info since she's a doctor. I see her all the time, so she has a TON of notes on me.

My therapist said in the state she practiced before here, they scheduled that appointment even if the records were pristine, but that it varies state to state. Hopefully here it's more like what you said. I'm so relieved to hear I can go to my own doctor for it. The mere thought of going to someone just to have that person turn their back, ask me if I know what year it is or some nonsense, and then declare me totally fine stresses me out to no end.

Will do! Thank you again!
05/23/2012
Contributor: GONE! GONE!
All I can say is good luck. I was going to apply myself but my disabling condition is so nebulous and ill-thought of that I didn't end up bothering. Everyone I know who has been on it needed a lawyer no matter how concrete and recognized their illness was though.
06/22/2012
Contributor: LadyDarknezz LadyDarknezz
I offer my support to you all the way. SSD and actually winning your case can be terribly difficult. I was on it when I was a child due to some life hindering breathing problems I had, but I overcame them once I became a teenager.

However, now I have this rare pancreatic disease and I've been fighting Social Security for almost 3.5 years now. It's an uphill battle and it takes lots of family/friend support and determination to keep challenging the very flawed system.

I feel like I have no life now because there are days when I can hardly get out of the bathroom or bed because of how terrible Sphincter of Oddi Dysfunction is. (I have the rarest and hardest to treat type, which is type III). I went from being a popular, superstar university student, working and doing so much with life to the way I am now: Extremely depressed, on constant medications, and I have a low opinion of myself as a person. Most of my friends sort of went on without me and never check in on me. None of them visited me when I was in the hospital numerous times, even when I called them. It is a terrible situation to be in, and I feel for anyone who has to go through anything similar, AND have Social Security treat you like a lying idiot.

I wish you all the luck in the world and hopefully both of us can get our medical issues taken care of properly.

PS. I also have a lawyer, but he pisses me off...He's practically worthless and I am considering finding a new one. I really wish I didn't have such a complicated case. Again, good luck!
06/22/2012
Contributor: - Kira - - Kira -
Quote:
Originally posted by LadyDarknezz
I offer my support to you all the way. SSD and actually winning your case can be terribly difficult. I was on it when I was a child due to some life hindering breathing problems I had, but I overcame them once I became a teenager.

However, ... more
Thanks! I'm sorry you're having such a hard time with them. That seems to be the case all too often sadly. I hope you get yours soon. It's such a shame they treat ill people so badly.
06/22/2012
Contributor: Crystal1 Crystal1
I've been in the process of trying to get disability for about a year and a half. I have anxiety/PTSD/panic attacks. I'm pretty normal when I'm just at home hanging out, but I can't drive very far and I can't deal with being out in social situations for very long. (More to it than that, obviously, but I'm not going to bore you with details.) The last few months at my last job were pretty much a nightmare.

But it's been a struggle because the doctors they send me to for evaluations ask questions like who the president is, if I can count to 40 by 3's, and how I'd find my way if I got lost in the woods. And then I get back their decision that I "have some restrictions, but nothing that should keep me from working".

My best advice is to find a REALLY good lawyer. I'm about to drop mine, because he's basically done nothing. I hope things go well for you!
06/22/2012
Contributor: - Kira - - Kira -
Quote:
Originally posted by Crystal1
I've been in the process of trying to get disability for about a year and a half. I have anxiety/PTSD/panic attacks. I'm pretty normal when I'm just at home hanging out, but I can't drive very far and I can't deal with being out ... more
I hope you get a better lawyer soon! I can't count to 40 by 3s and without breadcrumbs I'd be in the woods forever. I've always thought those were bad things, but maybe they'll work in my favor?
06/22/2012
Contributor: mrs.mckrakn mrs.mckrakn
Never
08/29/2012
Contributor: Sundae Sparkles Sundae Sparkles
I have never been on SSDI
my father has for the majority of my life for a Physical condition.

I do not know how he ever lived off SSDI (paying for a home and raising me) and how he continues to live (renting out someone spare bedroom in a trailer in the woods no car/no life). before his Accident my father was a long hall trucker who was an owner operator (very good money) his doctors would no longer allow him to work after the accident.
I feel horrible for anyone who is in a situation that they need to be on SSDI
get used to living off less than 12 thousand a year...
08/29/2012