The New Intimacy

Endometriosis: anyone else suffer from it?

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Contributor: lalapetitee lalapetitee
I was reading that 1 in 7 women suffer from Endometriosis. It made me think....how many other women on Eden suffer from it too.

In case you have never heard of it, it is a disorder of the female reproductive system. It is caused by endomitrium tissue dislodging from the uterus and growing outside of it. The most common places are the outside of the ovaries, fallopian tubes and uterus its self. When the tissue sheds it all sheds causingsevere pain, vomitting and etc. It will usually feel like your stomach is attempting to remove its self from your body, atleast it does to me. It can cause pelvic and other joint pain, back pain and even infertility in extreme cases.

Do you suffer from Endometriosis? How do you treat or maintain it each month?
01/07/2012
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Contributor: EnChAnTiNg EnChAnTiNg
I never had endometriosis, but a close friend of mine did have it. At first her symptoms mimicked pregnancy becase it started off with some minor spotting and vommiting, she soon found out thought that it was not pregnancy. Hers was so sever that her doctors highly recommended a hysterechtomy. At first she declined it, but not too long after she chose to have it becasue the pain was so severe, and it was not getting ay better. She still had a few issues after the hysterechtomy. That was over 2 years ago, and she is not doing just fine. She obviously can not have children now, but her case was so severe that even if she did not have the hysterechtomy, she would have most likely been infertile anyways.
01/25/2012
Contributor: levellc09 levellc09
I suffered from ot since I was 12. Took me 5 years to get pregnant but it didn't take any drugs or etc. My doc said that childbirth may decrease my pain by 50% once I gave birth. Once I got my 1st period after having my first child they were less intense and I had less bleeding. Now that I will have my 3rd I'm hoping it goes away completely
01/26/2012
Contributor: indiglo indiglo
Yes, I was diagnosed as a teen. I have been on hormones since then to control it. I finally found a formulation that works well for me, so my symptoms are under control. I had to go off the hormones for a short while at one point (insurance woes) and all my symptoms came right back. So I know that the hormones really work for me, and keep my symptoms in check. My OB/GYN says I'll be fine to stay on my hormones right up to menopause, so hopefully they will continue working for me.
01/26/2012
Contributor: levellc09 levellc09
Quote:
Originally posted by indiglo
Yes, I was diagnosed as a teen. I have been on hormones since then to control it. I finally found a formulation that works well for me, so my symptoms are under control. I had to go off the hormones for a short while at one point (insurance woes) ... more
How expensive are the hormones. I don't have insurance and once I give birth my medacaid will go away. My doc won't give me hormones until my period returns which is usually 2 or 3 months after I heal up.....my coverage will be gone by then :-( the loop holes the system create to not cover things.
01/26/2012
Contributor: Kate Kate
I suffer from it, I was diagnosed around age 19. It was discovered during laparascopic surgery that was done initially to remove benign cysts. I'm 24 now and doctors say I have an "extreme" case, it's also around my bowels too so it's unpredictable when I have my pain attacks. I'm on Nuva ring which seems like it may have made a difference. One specialist that I went to wanted me to go on a macrobiotic diet but it was too strict for me so I am currently working on losing the 50lbs that I put on during my hormone treatment that turned me into a total sloth. I went on several drugs, one was Lupron, it was a shot that I had once every 3 months for a year. The cost of one shot was around $1300 and it was not covered at all so my parents paid for it in hopes that it would help. I don't think it has, it made me go through the symptoms of menopause and generally feel sick for the year that I was on it and I feel like I still have the short term memory loss. I wish I had listened to all the horror stories that I read online while researching Lupron but I was desperate that something would "cure" me even though there isn't really a cure. As for pain management, I take it a day at a time. I was on Lyrica but I don't have a drug plan and I only work part time so it's too expensive. When I do have pain that becomes unbearable I try to put it off for as long as possible and if I can still move, I get someone to drive me to the hospital where they give me something for pain so that the pain is dulled. If anyone on here with endo wants to add me, by all means please do I'd love to hear what has worked for you guys!
03/19/2012
Contributor: levellc09 levellc09
I still haven't gotten on hormone therapy and my daughter is a few months old now. Its just too expensive to see the doctor and pay for meds out of pocket. I use hot water, breathing and a junk free diet with lots of water and veggies to help ease my episodes. I am hoping this helps some what. I can t imagine going 12 more years like this. Ugh!
10/01/2012
Contributor: *Camoprincess* *Camoprincess*
I was diagnosed with Endometriosis when I was 16 through "exploratory" Laproscopic surgery. I would get cramps so bad they would go in my back and down my legs I would black out. Nothing over the counter touches the pain, I had the Endometrium Tissue cauterized from my ovaries and my tubes during that surgery. I was told at that point I had a 40% chance of ever having kids which was a lot to take in at 16 years old knowing that I wanted a family of my own when I got older. I went on the Lupron Depo Shots for 6 months after my surgery and then was put on birth control. The pills never helped and when I wasn't on the pills I would go 3-6 months without a period an MANY negative pregnancy tests once I started having sex. I would say things to the doctors an got nowhere, I then lost my insurance an when I would go so long without a period I would have to go to the ER to get a pill to stop the bleeding because I would hold out hope that it would eventually stop. I can say 2 months of bleeding is NO fun especially with bad cramping that nothing helps aside from prescribed pain meds. I had a Hysteroscopy and D&C when I was 21 years old for all the same symptoms, to be told they couldn't find anything wrong an that there were NO signs of Endometriosis, I know there is NO cure so where did it go?! Miracle maybe?! I have no idea I still have horrible periods but can't go on any type of hormonal birth control because it raises my blood pressure. My Primary Care doctors believe I have Poly Cystic Ovarian Syndrome as well which I am praying I don't! I want to be able to get pregnant without medication when I finally am settled back into a long term relationship or remarried. I am scared that I may NEVER get pregnant. I won't go into those thoughts cause well yeah they get me down. If any of you ladies want to follow me and chat on here you are more then welcome to. My Skype is also listed if you use that an want to chat on Skype!!


Hugs to all who suffer from Endometriosis. It sucks and is horrible! I wouldn't wish the pain and heartache on my worst enemy!
10/03/2012
Contributor: Virgingasms Virgingasms
Most of the women in my mom's family have it so I wouldn't be surprised if it was what's caused me and my sister such extreme pain since we started menstruating. When we brought it up to our mom and doctor they always said we were too young to have it, but reading how young a lot of you were when you were diagnosed is reassuring. Too often people want to chalk it up to cramps or overreacting.
10/12/2012