I couldn't really find much about AF, CFS, and only a little about Fibromyalgia. I happen to have all three in a cluster (with hypothyroid and low progesterone) tossed in the mix.
Basically, I get tired really easily and if I don't take immmaculate care of myself--vitamins, supplements, exercise, healthy regular meals, stress management, tons of sleep--my body hurts like bonkers and my sex drive hides.
It becomes a cycle of fear...living in fear that the very stress caused by putting pressure on myself will hurt my adrenals further (they are already so damaged according to saliva and blood tests that my kidneys are now messed up, so I'm definitely not the norm, I'm pretty advanced in it), and stressing about losing the strength of my relationship and my own sexuality, and on and on.
Anyway, it's a battle, especially because my sleep cycle is off due to coritsol levels being opposite what they should: tired all day and second wind at midnight, wide awake. So I don't want to have sex until my partner is already in bed and snoring. Actually, I want to. I'm just too exhausted or have nerve pain.
I made this thread in hopes that anyone else suffering from these confusing syndromes has a place to vent, share, and discuss.
It sucks being sick and going to a bunch of doctors who insist you're fine! They didn't believe me until years later, firmly in the middle of my second decade of living, my blood tests showed my kidneys were barely chugging along.
I firmly feel sex is a wonderful, curative, healing opportunity. It's just sometimes hard to get to the place where you remember that and reap the benefits.
Basically, I get tired really easily and if I don't take immmaculate care of myself--vitamins, supplements, exercise, healthy regular meals, stress management, tons of sleep--my body hurts like bonkers and my sex drive hides.
It becomes a cycle of fear...living in fear that the very stress caused by putting pressure on myself will hurt my adrenals further (they are already so damaged according to saliva and blood tests that my kidneys are now messed up, so I'm definitely not the norm, I'm pretty advanced in it), and stressing about losing the strength of my relationship and my own sexuality, and on and on.
Anyway, it's a battle, especially because my sleep cycle is off due to coritsol levels being opposite what they should: tired all day and second wind at midnight, wide awake. So I don't want to have sex until my partner is already in bed and snoring. Actually, I want to. I'm just too exhausted or have nerve pain.
I made this thread in hopes that anyone else suffering from these confusing syndromes has a place to vent, share, and discuss.
It sucks being sick and going to a bunch of doctors who insist you're fine! They didn't believe me until years later, firmly in the middle of my second decade of living, my blood tests showed my kidneys were barely chugging along.
I firmly feel sex is a wonderful, curative, healing opportunity. It's just sometimes hard to get to the place where you remember that and reap the benefits.