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Originally posted by
Selective Sensualist
I hope that you feel better soon and that you can get a definitive diagnosis. I agree: It is definitely less scary when your condition has a name! That which is nameless and unidentified cannot be properly addressed and treated. Also, the
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I hope that you feel better soon and that you can get a definitive diagnosis. I agree: It is definitely less scary when your condition has a name! That which is nameless and unidentified cannot be properly addressed and treated. Also, the imagination tends to go to the scariest places to provide answers to what is unknown.
I perfectly understand how it is to have something wrong yet have medical professionals stumped for a while in determining the source of my symptoms. I had always thought that an MRI would reveal just about anything, but I was once sent home from the ER after an MRI didn't reveal anything. I knew that I was not crazy and that my pain was real, yet I felt abandoned by the medical community. I returned to the ER suffering from the same horrible pain three days later, and the doctor ordered a nuclear imaging test that time--and they then located the source of the trouble, and I had surgery to remove it. Part of the diagnostic process is knowing which test to order. If the wrong test is ordered, you can get a false negative. And even if the right test is ordered, you can still get a false negative (as I got with the MRI, which should have revealed my problem).
I realize your case is different, but I just wanted to share to give you hope. I also wanted to encourage you to not be afraid to get the opinion of a second cardiologist (and perhaps even a third--even if you have to travel somewhere else to see one). A fresh set of eyes and a slightly different approach, perspective, and thought process from another professional could be very beneficial. You may very well have an excellent doctor, but s/he cannot be all-knowing and perfect in diagnostic skills--no one is! Therefore, your doctor should not be offended if you seek a second opinion. I highly encourage you to do so.
You may also seriously consider getting the opinion of a pulmonologist. Pulmonary problems can present as chest pain (as can gastrointestinal problems, so if you rule out heart and lung problems, you might want to visit a gastroenterologist). I hope this is resolved soon, though, so you don't have to go through so many doctors just to get a diagnosis.
Good luck, hon.
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Thanks SS! One of the doctors I saw while I was at the hospital (I saw two different ER doctor's in addition to having my cardiologist see me while I was there) suggested that I see a neurologist. One of the things that came up while talking about my medical history was the various headaches that I am subject to. They don't think that it's related to the chest pain and breathing problems, but he did think I should get them checked out.
Oh and they did have me swallow some vile tasting liquid that completely numbed my upper gastrointestinal tract to make sure I wasn't feeling pain from that area. I wasn't. They also did a CT scan to check for pulmonary embolism. No clots showed up, thankfully. So they were pretty thorough. Though there are undoubtedly more things that they could test for.
I am actually breathing better today. I can say a complete sentence without running out of breath... as long as it's a short sentence. But that's better than running out of breath every few words. My chest still hurts rather a lot though. I will definitely be following up with my current cardiologist and will see another one if he runs out of ideas.
I had to see three different gynecologists a few years ago when I had a cyst in my abdomen that was pressing against my vaginal wall and causing pain. The first two ob/gyn's kept saying I was just frigid when I knew I wasn't. (Though living with that pain for several years did leave me with some sexual hang-ups.) The third ob/gyn found the cyst, which was the size of a large walnut, and also found, once they opened me up, that I had endometriosis and an abdominal hernia as well. I am all about getting second and third diagnoses if I don't believe the doctor is listening to me.
However, I believe that these doctors are listening to me, my problems just have them stumped. We'll just have to see how the latest diagnosis of viral pleuritis holds up. And try to figure out what the hell is going on with my blood sugar.
But thanks for all your support and suggestions. I really appreciate it!